How Levaquin Tried to Kill Me, but I Fought Back

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img_5379I have a very serious story to share. I’ve put off writing it for a number of reasons: fear that writing it down gives it more power or permanence in my life, fear that the story isn’t actually over, shame that I allowed this to happen at all, especially given what happened to my dog Holly. That’s probably the biggest reason I’ve put off sharing this on the blog and on social media: I should know better than to just blindly trust a doctor prescribing medication. That killed my dog. And it could’ve killed me.

On April 20, 2016, my doctor (now former) prescribed a fluoroquinolone antibiotic called Levaquin (actually I took the generic, levafloxacin — more on that later) to treat a sinus infection. The only warning he gave me was to take a probiotic along with it, as it might upset my stomach. I’d been a patient of his for years and had no reason to question his medical advice. While I’d never taken a fluoroquinolone class antibiotic before, I trusted he knew best.

Ah, trust. There’s that word. I guarantee you there are some who will read this post and scorn me for just trusting my doctor and not doing research. I know this will happen because it happened after Holly died and it happened to my face when I told people about what Levaquin did to me. Because it’s easy to put on moral superiority when it’s someone else’s pain. If you’re gearing up to comment about how stupid I was to blindly trust my doctor, do everyone a favor and just don’t. I won’t approve your comment anyway.

The morning of April 23, after taking my fourth dose (of a 14-day course), I ended up in the ER with breathing difficulties, racing heart, vertigo to the point of being unable to stand, and extreme anxiety. Let that sink in for a moment: my first symptoms of an adverse reaction were serious enough to justify a trip to the emergency room.

It took the ER techs four tries to get an IV started. While laying there I developed internal tremors–I don’t know how else to describe them other than to say there were earthquakes going on inside my body. I asked the doctor if this was a reaction to Levaquin. He said no, if it was a reaction, my lips would be swollen or my throat would be closing. He said these symptoms were simply me being dehydrated.

He was grossly misinformed. What I actually was experiencing in that moment was an attack on my central nervous system.

Over the next couple of days my symptoms escalated to include: pain in my hamstrings and hips, roaming anxiety, mental fog and confusion, uncontrollable muscle twitching, dizziness, internal trembling, inability to regulate body temperature, difficulty breathing, middle ear pressure and tinnitus, racing heart, insomnia, myoclonus, peripheral neuropathy.

Any one of those symptoms alone is troubling. Combined, they were terrifying.

Then came the word loss and cognitive dysfunction.

Word loss: I would look at an object, know what the object was and be unable to get the name of the object out of my mouth. Remember, I’m an author. I make a living using words. At this point I figured my writing career was over.

Cognitive dysfunction: I couldn’t process information, especially if I had to process more than one information input at a time. For example, if I was driving (one input) and someone said something to me (second input), I would lose the ability to focus on either.

Some of the most crushing moments in this journey came when my friends laughed at me when they witnessed my cognitive impairment first hand, even though I’d told them I’d been poisoned by Levaquin and was going through severe trauma. They actually laughed at me. In fact, what I found is that for the most part, people don’t want to hear that you’re struggling. It makes them uncomfortable. What they want to hear is that you’re fine, because that way there’s no responsibility on their part. I quickly discerned who truly wanted to hear how I was doing and who just wanted me to tell them I was “fine”. I’m so grateful to those friends who actually listened and cared. (Thank you.)

Overwhelmed with this onslaught of symptoms, I of course made an appointment to go back to my doctor, but wasn’t able to get in to see him until the following week. So I opted to see his assistant at the end of the week, still 3 days away. In the meantime, I took to the internet to research what the hell was happening to me.

What I found scared me to death. Story after story of people crippled by this medication. Some cases were so severe, people took one pill and never walked again. If you think I’m kidding, go look for yourself.

During that search I came across a site called FloxieHope. There I found stories not only of people who’d been adversely affected by Levaquin (as well as Cipro, Avelox and other fluoroquinolone antibiotics), but people who had recovered. I scoured the recovery stories, making a list of the things they’d done to get better. From that list I made a plan of action and got to work.

Later that week, I did see my doctor’s assistant. She ran standard tests to check system function, but (as is the case with most people poisoned by FQs) all my numbers came back normal. In today’s medical world, normal numbers means no problem. While the assistant agreed something was happening to me, because my numbers were normal, she had no way of treating me. When I explained to her and even showed her the research I’d done online for how others have recovered, she literally told me to stop reading the internet.

Let me say this as clearly as I can: researching on the internet saved my life.

At this point my doctor, clueless on how to help me and probably afraid I was going to sue him, started passing me off to different specialists. The only one who was of any help at all was my neurologist. He is the only doctor in this process who knew that fluoroquinolone antibiotics cause memory loss and neuropathy (both which he diagnosed me with).

Based on what I’d read from recovery stories, I sought the advice of a naturopath. I also began acupuncture and therapeutic massage. And I prayed. A LOT.

I cannot begin to describe the anguish I was in at this point. I don’t use that word lightly. My body hurt. Every time I tried to fall asleep, myoclonus would startle me awake. Anxiety attacks hit me out of nowhere. I couldn’t think. I couldn’t eat, either. Not only had the antibiotic wrecked my intestines, it had also caused strange issues with my ability to swallow. I also experienced heartburn, which I never have. My guess is this had something to do with the central nervous system damage and smooth muscle function.

I want to stop here and note a couple of things. First of all, two weeks after I took Levaquin, the FDA updated the safety guidelines to state that doctors should not prescribe fluoroquinolone antibiotics for routine infections. This is something I’d literally argued with my doctor about. I told him this medication was like a nuclear bomb going off in my body. He maintained he’d followed standard protocol according to (flawed) FDA guidelines regarding these drugs. (You can read more about the history of those guidelines here.) I have to say, I can’t help but wonder what my life would be like today had the FDA not dragged their feet and instead updated those guidelines even a couple of months earlier.

I contacted a lawyer a month after the initial reaction. He said if I’d taken the name brand medication, Levaquin, I would have a slam dunk case. But because I took levafloxacin, the generic form, I couldn’t sue the manufacturers, because there is a law in America that consumers cannot sue the manufacturers of generic medication. That’s right: no recourse and no justice for people damaged by generic forms of medication. Keep in mind that many insurance companies require patients take generic forms if they exist. The only action I could take, the lawyer told me, was to contact my representatives and ask them to change the law. Isn’t that great? God bless America. (Needless to say, I’m not a huge fan of Big Pharma or Big Gov.)

Armed with the recovery stories from FloxieHope, my naturopath and I came up with a regimen of supplements to counteract and heal the damage done to my body. It was a bit like throwing spaghetti at the wall and seeing what stuck, but I was desperate to try anything if it would get me my life back.

Here are the things that helped me recover from Levaquin toxicity, as well as additional information for those seeking help. Please note that not everything works for everyone. What helped me might not help you. Because there is no set treatment or protocol for FQ toxicity, you have to try things and see if they help. If they don’t, then don’t use them. That being said, here’s what helped me:

  • Magnesium
    • Levaquin robs your body of magnesium, but having an abundance of magnesium available in your body can help prevent and repair damage
    • Magnesium chloride and magnesium threonate are good forms to take
    • Add magnesium in liquid form to your drinking water and drink it throughout the day. I used brand called ReMag.
    • Natural Calm is a magnesium citrate drink that can help calm anxiety, which is helpful before sleeping, but it can irritate your stomach
    • Magnesium threonate crosses the blood-brain barrier and specifically targets brain function, which can help with brain fog
    • Epsom salt baths help relax your muscles and rid your joints of pain, but also get magnesium into our system. Very helpful before trying to sleep.
    • Magnesium lotion is like a miracle for aching joints. You can find it at health food stores such as Sprouts.
  • Turmeric
    • Taking turmeric supplements or eating foods rich in turmeric can help fight inflammation
  • Bone broth and anti-inflammation diet
    • Eating a clean diet that is high in anti-inflammatory foods will help you recover faster
    • Avoid sugar and gluten as much as possible, as both impede brain function
    • Bone broth can help with immune function, gut health and supply collagen
  • Probiotics
    • Take a good probiotic to help get your gut flora in balance. Studies show your gut health directly affects your brain health and function.
    • Fermented foods (sauerkraut, kefir) are also hugely beneficial to gut health
  • Active B Vitamins
    • B vitamins are essential for nerve function as well as memory. Taking the active form (often has “methyl” in the name or an L in front of it) makes them more bioavailable to your body
    • I like the Jarrow’s B-Right. I could tell a different in energy levels and mental clarity after I started them.
  • ALA, NAC, Taurine
    • These supplements support detoxification and help restore nerve function
  • CoQ10, MitoQ
    • Fluoroquinolones break down cell walls and kill mitochondria. That’s how they work. So even after the drug is out of your system, it leaves a trail of mitochondria damage, which some think is permanent. (That hasn’t been the case for me.) Because mitochondria are your energy centers for your cells, this leads to mental and muscle fatigue, as well as other problems due to poor cellular function.
    • I found CoQ10 helped with my energy levels. I splurged on two months of MitoQ and felt a big difference. Because it’s expensive, though, I switched to Jarrow’s brand QH+ PQQ. I also found it effective.
  • Healthy fats
    • Adding lots of healthy fats to your diet will help boost your brain health and help get neurogenesis (birthing new neurons) get started again.
    • Coconut oil, MCT oil, avocados and avocado oil, and grass-fed butter are excellent sources of Omega-3 acids which maintain brain health and even reverse neurological decline (such as Alzheimer’s)
  • Tart Cherry Juice
    • Full of natural melatonin, so very useful before sleeping. I used the concentrate so I could mix my own ratio depending on how much help I needed getting to sleep.
    • If insomnia was really bad, or I woke up in the night, I’d take liquid melatonin as well.
      • My doc prescribed Xanax to help me sleep, but it gave me extreme paranoia, waking nightmares and hallucinations.
  • Thorne Basic Detox Nutrients
    • This is a multivitamin that has the active B vitamins, but also has phosphatidylcholine, which helps rebuild cell walls and detox the liver.
    • I would take this OR active B vitamins, not both at the same time.
  • L-theanine
    • I’ve added this recently and find it helps with focus and lifting brain fog
  • Collagen
    • Levaquin damages connective tissue, not only in your joints but also in your skin, your teeth, everywhere
    • I think collagen quickened my recovery, by helping replace what was being broken down by the drug
    • Most powdered forms taste like cow (ugh). The brand I prefer is Bulletproof Collagen Protein. It has hardly any taste. I blend it into my coffee, along with grass-fed butter.
  • Eat foods that boost glutathione
    • Glutathione is a product made by your liver that helps detox bad stuff. Certain foods boost glutathione production: brussel sprouts, broccoli, parsley, cabbage, cauliflower.
  • Keep moving
    • Continue to move, even if your joints hurt, but take care to do so carefully so you don’t tax your tendons or risk falling
    • Using your muscles will help heal mitochondria, but don’t overdo it. Go slow and work your way up after you start regaining your energy.
    • I did qigong in the beginning, going very slow
  • Meditate and pray
    • Levaquin fries your central nervous system, skewing your autonomic system so that your sympathetic (fight or flight) gets amped up, and your parasympathetic (relaxation) gets suppressed. This is one of the reasons people experience extreme anxiety when on levaquin.
    • Cyclical breathing (inhale for a count of 5, exhale for a count of 5) can help realign your autonomic system. The Heart Math Quick Coherence technique is really good for this.
    • Listening to healing meditations can also help alleviate anxiety. Personally, I liked listening to The Honest Guys healing meditations on YouTube.
    • Every night when I soaked in the epsom salt bath, I’d have a chat with God about how we were going to get through this and this wasn’t how I was going to end. Your mileage may vary as far as your spiritual life goes, but I found this to be immensely helpful, especially in helping calm down the anxiety and fear. I had faith that I’d get better. That’s what our bodies do. They heal. I knew my job was to support my body in doing its job.
  • Acupuncture
    • I did a series of whole-body acupuncture sessions, mostly to target neuropathy in my hands and feet. It helped the neuropathy, but also helped calm down my whole body. I don’t know how, but it worked. The first couple of sessions were odd, but after that I actually liked it.
  • Drink water
    • I drank a gallon a day to help move the drug out of my system
  • Therapeutic Massage
    • I experienced a lot of tendon and joint pain, and found therapeutic massage helped. I think it also helped move the levaquin out of my tissues and lymphatic system.

Some advice for anyone going through this:

If your doctor won’t listen to you or believe you (and odds are they won’t), trust your gut and find another doctor if possible. It took me three months to get an appointment with a new doctor, but it was worth the wait. I found a new doctor who is willing to work with my naturopath and doesn’t mind that I do alternative treatments such as acupuncture. She also didn’t question if this had really happened to me, but rather ordered additional tests that my original doctor didn’t order, to rule out other kinds of damage and risks.

6a0ff12746a60b5ec15ab5d692ad4d8e.jpgI’ve found that my mindset made a huge difference in this journey. A week after that initial ER visit, I had this overwhelming compulsion to get a massage, despite being in terrible pain. I called some places near my home, but they were booked all weekend. This was at noon on a Saturday. I called another place a little farther away, and they had an opening at 1pm. I raced over there. Chatting with the therapist a bit beforehand to explain what was happening, we came to realize we both were believers. During the massage, the therapist prayed over me. Now, your mileage may vary, but for me, that was pretty amazing. At the end of the session, he said he’d wondered what was up with that opening in his schedule on a Saturday, since he’s usually booked solid. He said clearly God knew I needed that slot. To me, that was a sign that I wasn’t in this alone, and that I was going to get better. I told myself Levaquin poisoning was part of my story, but it wasn’t the end of my story. This wasn’t the end of me. Reminding me of this every day kept me going. I rejected letting this poisoning settle and become who I am. I didn’t and won’t let this define me.

One of the parting shots of Levaquin toxicity is hair loss. Mine started shedding two months after I took the medication. It came out in handfuls. It’s like Levaquin’s one last way of giving you the finger. It’s bad enough that you hurt and you can’t think. Then your hair thins out. Mine got to the point where I didn’t want to leave the house. It was really awful. Again, with the help of internet resources and my naturopath, I did some things to kick-start the regrowth process: Wellness Mama’s Hair Growth Serum, castor oil, essential oils, liquid biotin drops, collagen, and zinc supplements. It’s now five months after the shedding began and a lot of it has regrown. I cut it back to a pixie cut so the difference in lengths isn’t as obvious. It’s definitely growing in.

img_5786I’m now almost seven months out from taking that first dose of Levaquin. I’d say I’m about 98% better. I’m writing again, thank God. When people ask when my next book is coming out, I feel a sense of shame. This medication robbed me of most of this year, and that is time I’ll never get back. Still, I have so much to be grateful for. Everyday I’m grateful I haven’t suffered an aortic aneurysm or snapped an Achilles tendon. I still experience some joint and ligament pain depending on what I eat and how I exercise. And while I can tell my cognitive function isn’t 100% yet, I’m going to get there. I’m going to come back from this better than I was before.

This is not the end of me. This has only shown me how strong I am. 

If you’ve taken Levaquin, Cipro, Avelox or any other form of fluoroquinolone antibiotic and think you’ve suffered adverse affects, please visit FloxieHope. The stories and information on that site saved my life. Please also feel free to leave a comment or share your story below. My post about Holly and Deramaxx has proven informative and useful to others. My hope is this post will be helpful as well. That being said, I reserve the right to delete any disparaging remarks. If you have nothing beneficial to add to the conversation, go elsewhere. And if you know someone going through chronic illness or health crisis, please show them compassion, patience and understanding. For the love of God, don’t laugh at them.

TL:DR – Taking Levaquin can seriously damage your health. Proceed with caution.

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52 thoughts on “How Levaquin Tried to Kill Me, but I Fought Back

    Larissa D said:
    November 30, 2016 at 3:14 pm

    Amy,
    I remember when you first posted about this on your personal FB. I had never heard about it, and over 17 years as a hospital RN, I have administered many doses of this antibiotic class. Within days of you posting, I read the FDA’s warning. Shortly after that, I had a patient start displaying strange neurological symptoms after 3 doses of IV levaquin. Thankfully, my doctor who was on that day had also read the new guidelines. We aren’t using it as much as we used to. Thank you for sharing your experience. I’m sorry you had this happen to you, and pray for your complete recovery.

      Andrea Siani said:
      December 2, 2016 at 3:35 pm

      My son in law is a DPT and after my experience with FQAD he is very aware of the serious side effects and sees patients often that he can trace their tendon issues/nerves (on the Epic medical record program) to having recently taken a fluoroquinolone antibiotic. The serious debilitating side effects are currently going unrecognized because there is no biomarker and they are also hard to attribute to an antibiotic when awareness is so low.The increase in tendon, joint, back and other unexplained muscular skeletal conditions can often be traced back to FQ antibiotics. Change is slow but awareness is growing. Thanks you for listening to your friend.

      Marie Desilets said:
      May 28, 2018 at 9:23 am

      Thank you for sharing your info Amy. I am 60..have taken flouro’s about 8 times in ten years..never knowing that my growing number of health issues were related. In 2015 I was given back to back rx’s of levaquin..that was the straw that broke the camel’s back..all he’ll broke loose. I won’t go into what I’ve been through and continue to experience. I’m just thankful for your input. I “rescued” my elderly mom and elderly mother-in-law from receiving this poison that I’m sure would have killed them. Had I not been present on 2 dif occasions ..the doc’s would have written out their death sentence..I can’t believe how the FDA is able to keep this on the market and not remove it from the shelf!!! And how the medical professionals STILL don’t seem to have all the facts.

    Dion Lucas said:
    November 30, 2016 at 5:08 pm

    Amy, first of all, thank you for sharing your story. You are very brave in doing so and by doing that have informed people not only about this awful drug but to trust your instinks, question your doctor even if you have trusted he or she for a long time, get informed through the Internet, and fight like hell when you need too. Even though I know most of your story, reading it here, all at once, makes it even more powerful. I’m holding back tears as I type this. I know you know that right about the exact time this started happening to you, we too trusted our oral surgeon in prescribing Percocet to our handicapped daughter after having her wisdom teeth removed, to see her two days later in the ER with a near fatal overdose, even with us following the prescription dose correctly. Although the stories are different, the similarities are what sticks with me. Don’t have complete trust in anyone in the medical community and get all the information you possibly can before starting or putting a loved one on any drug. My heart goes out to you. I love you and wait for the day you post a follow up saying you are 100% my friend. PS: I completely agree with you on the faith part. God had a different plan and he wasn’t ready for you to come to heaven just yet.

    Rissa Watkins said:
    November 30, 2016 at 5:54 pm

    Unfortunately, I can believe some of your friends laughed at you. I got it all the time and try to make light of it. But some days it is tough. I snapped once at my family when they laughed and asked if they would laugh at someone in a wheelchair or someone missing limbs. Haha, it’s funny to laugh at my disability caused by chemo & a stroke. They felt really bad and had no idea- because I was always trying to make light of it to put on a brave face- how much it bothered me. Maybe if you explained it that way to the friends who did laugh they would understand. Though it is horrible that they did that to you.

    bkonigsberg said:
    November 30, 2016 at 5:56 pm

    I’m glad you wrote about this. I know it isn’t easy to share stories like this, and you are brave to do so. Thank you! Also, I’m glad you’re 98%! Here’s to 100% soon!

    Nannette White said:
    November 30, 2016 at 7:01 pm

    Amy,

    I just read your blog post with tears in my eyes. I have not been the friend I wish I was.

    I love you. I am so sad this journey has been so long… And so hard, and so much on your own.

    And then again, I am so thankful for your tenacity….will….strength and love for research…. And that God has been on your side throughout.

    Thank you for writing this blog, which I know is going to help SO many people!

    I love you, dear friend!

    Nanners

    Irene said:
    November 30, 2016 at 9:31 pm

    Amy, I am so sorry you went through such a painful and harrowing experience. It also sounded so demoralizing to not be believed. But you had such resilience that you kept going, did your research and I thank you for sharing your stories AND the things that helped.
    Interestingly, turmeric and probiotics help inflammation with Inflammatory Bowel Disorders, too. It is so important to have the community like you got in your healing therapist. And hard to deal with the pain of what people say and do, not realizing how much it impacts a person going through it..Sometimes it just helps to have someone asks what they can do, or bring you coffee or lotion or something like that. I think it is like war trauma — only when so,some has been in the trenches with you, do they “get it”.
    That support is golden. And so am glad your faith helped. I am glad you got through this and are embracing the days. It really helped me to read this, even though I wish you did not have to go through so much pain to be sharing this piece of your life journey. I sen dyou big hugs and my sincerest gratitiude for this post an de your presence in my life, as it has been and as it continues to be.

    Lisa said:
    November 30, 2016 at 10:12 pm

    Hi Amy,

    Thank you so much for writing about your journey through fluoroquinolone toxicity! I’m so glad that you have made such a wonderful recovery, and I’m also glad that FloxieHope.com helped you! Can I please reblog this post on floxiehope.com? I think that the people in the “floxie” community would appreciate hearing about your journey and your healing methods.

    For some reason I can’t think of much to say right now (it’s late, and I’m a morning person), but I’m so glad that you have recovered so well and that you shared your story with your community!

    Hugs of gratitude,
    Lisa

    Kristi said:
    November 30, 2016 at 10:14 pm

    Amy,

    You were the first one to connect the dots for me. I took Levaquin 2x. 7.5 years before you and again 6 years ago and from day 3 post-Levaquin I was completely changed. For 7 years doctors tested me to try and determine what was wrong with me. They literally had no idea I was reeling from Levaquin side-effects. It wasn’t until you shared your story and I realized it was the “same” as mine that I checked my medical and pharmacy records to discover that I’d taken Levaquin. I had no idea! I literally took the antibiotic 2x and, though I thought I was going to die, never recognized the pain as being a side-effect. I literally just thought I had the worst bronchitis known to man or the swine flu and was dying.

    Thanks to your sharing your story, I have finally begun to intelligently heal. I love you. Thank you.

    Kristi

      Cheryl said:
      August 3, 2017 at 2:58 pm

      Hi Kristi – can I ask, after 7 years, how you have finally begun to intelligently heal and what are your symptoms? I am caring for my brother who is 8 years into his suffering from taking Levaquin and being not believed or treated by numerous doctors, painful emgs, being prescribed knock out painkillers, losing his business and any quality of life, he has now waived the white flag and moved from FL to IL to have me try to help find him anyone here who can relieve his suffering. I believe he most likely has permanent nerve damage, central nervous system damage and autonomic nerve damage in conjunction with digestive issues and PTSD and are really overwhelmed as to where to start to seek help for him. I just read Amy’s story and I am just not sure if trying all the things she did to heal would even work since it has been 8 long years of suffering for my brother with his symptoms? I hope you are feeling better and appreciate any comments or suggestions that you are able to provide?! Be well and thanks for listening.

    Dad said:
    November 30, 2016 at 10:38 pm

    What an Incredible Woman….that daughter of mine/ours… MTTNG!

    amykossblogthang said:
    December 2, 2016 at 6:06 pm

    What a nightmare! Am glad you figured it out and are on the mend.

    Frank said:
    December 2, 2016 at 6:30 pm

    Amy..you are strong , but you are also LUCKY! I am glad for you. I am 20 months out with peripheral neuropathy from Cipro. I used to climb mountains and now…crippled. I am doing many of the supplements that you have. The irony is I was a 33 year veteran Paramedic. I completely worshipped at the alter of Medicine and now I am betrayed by it.

    Dawn Valenzuela said:
    December 2, 2016 at 7:38 pm

    Reading your story was like reading my own. I was also floxed by levafloxcin and had the same symptoms plus a set of bonus symptoms such as rib dislocation problems and lymph drainage problems. I’d love to try all the same things you have but I’m restricted by the fact that insurance doesn’t cover these remedies and I went broke and into debt with all my own and my husband’s medical expenses this past year. He has congestive heart failure and COPD. You know how stress cause our symptoms to get worse? Yeah, well I’ve had more than my fair share of stress this year.
    Your story gives me hope though and I too have strong faith that God will bring me through this. I will do as many of the least expensive things you had success with and continue to pray for my own healing as well as yours and other like us. Blessings

    Doug Lieuwen said:
    December 3, 2016 at 9:32 pm

    I think it is human nature to trust our doctors not to poison us. I took cipro year after year and suffered terribly for it. I just wrote my recovery story as well. I too believe in the power of prayer.

    shannonfrench2013 said:
    December 3, 2016 at 9:54 pm

    I am wondering about your swallowing difficulties. I have never met anyone else who experienced that symptom. Is it gone now? Was there anything specific you did for it? It is quite scary.

      Cindy said:
      August 29, 2018 at 9:49 am

      Hi,
      I wish I had known all this last month on July 9th when I too trusted a doctor who gave no warning and prescribed levoflaxacin for my first time for a sinus infection. One pill and my throat thickened, my tongue felt like a flaming fire. Straight to the ER and received Benadryl 50 mg and Pepcid 20 mg. It did help the symptoms, but the damage was done and ready to hijack my body. I have lived on Benadryl and pepcid mostly because the Benadryl is the only thing to calm my mental health deep dark depression. This article by Amy has given me hope. My functional medicine person is working with me on the supplements. The Paleo powder from Nutriwest really helps with collegen replacement. I had to wear a neck brace for a long time but that supplement has helped me gain some strength. But now it has moved into my rib cage and down my right leg and extreme nasea. I case manage Special Education students and I already took a day off to go to the ER to check out my heart. So far so good, but that fear of where will it strike next is quite debilitating. I am taking the magnesium, B12, and Vitamin D and now I am following a lectin free diet to help my stomach battle this ravaging poison. I had an endoscope done and they dilated where it was thickened, but it already feels thick again. It will be 2 months on Sept 9 and only one pill has made me feel like death is imminent. But I too have faith in God and I ask for healing everyday because my 13 year old daughter was adopted from China 12 years ago and I am single and I get so angry due to the grief and loss process that she may have to grow up with my sister.

    Gary said:
    December 4, 2016 at 4:58 am

    Hi Amy.

    Good story – Similar to mine. My levaquin adventure with legal options is also the same.

    https://floxiehope.com/garys-story-levaquin-toxicity/

    Bettina said:
    December 5, 2016 at 2:45 am

    Dear Amy, thank you for having the love and courage to share your Levofloxacin journey with us. It brings so much hope and inspiration to all of us.

    I got poisoned with that medication 13 days ago, exact same journey as yours, ER on day 2, them exponential decline cognitive, mental, musculoskeletal, hair loss, etc; absolutely all your symptoms. I have to add mild urinary incontinence, dryness all over my body (mouth, eyes, skin, vaginal) and difficulty swallowing.

    I am 41, single mom, full time engineer and very active before this medication.

    1. I wanted to ask you what to expect in terms of the recovery over time? Like week 1, month1, month2, etc

    2. Setbacks – what trigger them and how you manage them? As well as how long it took to return to healing time again after a setback.

    3. Thyroid – did you check your thyroid? I feel like this medication attacked badly.

    4. Menopause – where you in automatic menopause stage after taking Levofloxacin?

    5. Hair loss- my hair is falling more and more everyday, thinning badly. I want to do PRP platelet rich plasma with biotin. I wonder if that treatment would aggravate the natural course of detoxification?

    6. I started physical therapy, going slowly with the stretching, proprioceptive exercises, kegels, and tapping. Tapping is helping a lot with walking, joint stability and pain. Still I am able to walk not much, mainly for the risk of rupture – where you able to drive, walk, etc after your Levo assault? If so how much did you walk and what risks did you find?

    7. Glutatione IVs- Have you try them? I heard 2 grams is a good start, did you try other I treatments?

    8. Aquilles tendon – when we’re you start wearing heels and do more walking, etc

    9. Sex – when were you able to feel again the same drive after Levofloxacin? On top of dryness, I have no sex drive at all after Levofloxacin

    10. Panick attacks- I started experiencing this the night I was taken to ER, how did you cope with it and how they improved?

    Sorry for so many questions, I think this drug is extremely harmful, and we should spread the word to stop others from being poisoned. Nothing justifies this suffering, Dr’s should stop prescribing it, spend more time with their patients and find less harmful options for antibiotics.

    Thanks again Amy for sharing

    Much love,

    Bettina

    Abigail Johnson said:
    December 14, 2016 at 2:27 pm

    Amy. My mom was just prescribed levofloxacin today. I’m so glad she told me the name of her prescription because I immediately remembered this post. She’s going back to her doctor in the morning to tell him all the concerns we have over levofloxacin and to seek out alternative treatment. I’m so sorry you went through so much, but I’m grateful to God that you shared about it so I could prevent my mom from possibly having the same devastating reaction.

    Thank you.

    Joey Scoleri said:
    December 14, 2016 at 11:56 pm

    Your story is amazing and inspiring. I took 4 pills of levaquin and went through horrible anxiety, panic attacks and symptoms of neuropathy which have improved in the 6 weeks since I stopped. Nowhere near what you described but highly relatable. My acupuncturist told me I got off easy. I still get discouraged (am almost at 7 weeks off it) because I get better then suffer a setback but your story helped me a lot already. Thank you so much and I will continue the homeopathic path I am on. God bless you (I prayed and pray a ton – it helps so much).

    Lisa said:
    December 15, 2016 at 7:43 am

    Reblogged this on Floxie Hope and commented:
    This is Amy’s story of fluoroquinolone toxicity and recovery. It’s wonderful! Thank you for writing this, Amy! I am so glad that this is not the end of you, and that this horrible experience has shown you how strong you truly are. xoxoxo

    -Lisa

    tammyrenzi said:
    December 15, 2016 at 8:17 am

    Amy, thank you for sharing your story. I’ve never read the story of another Levaquin victim whose symptoms were so similar to mine. I share all of your symptoms except the stomach issues. The cognitive issues and anxiety, paired with the insomnia, were the hardest – but then again I am not sure that the snapping spine and inability to do more than shuffle along most days weren’t equally as painful. Just different pain I guess! That said, I am 10 years out and largely healed. Eating healthy foods, keeping my vitamin levels checked and supplementing (though I wish I could get it all from food, I can’t!), gentle yoga, daily walks of now 4 – 5 miles, and meditating have really helped. Levaquin was the beginning of quite a long nightmare, but though it I have become stronger, fitter, and overall healthier. Never would I wish it on another person, though. My story is on FloxieHope (Tammy’s story), and I am now hiking, exercising (brisk walking, not running! body couldn’t handle that!), writing, and running my own tutoring business. Keeping a good outlook is essential. Ridding myself of negative people in my life was essential. I now know that I am stronger than this and, no matter what comes my way, I will sit with it and be ok! I have met several people on Floxie Hope who are positive and uplifting, and we enjoy cheering each other on. For anyone reading this, it’s hard but don’t let anxiety, depression, or negative thinking keep you down. Get help – self help books and taking an MBSR class really helped me. Life can be beautiful again!

    Ben said:
    December 15, 2016 at 10:20 am

    Great share. I wanted to add a few things that might help others. Two things scream out at me. It made such a difference to me when I stayed active. Walks. Anything. The longer a wallowed in bed resting. Reading. The worse I felt. I would feel so much better when I did stuff. As much as I could without pushing myself too hard. Secondly, you MUST watch what you eat from now on. Absolutely no cheap foreign seafood – it’s full of quinolones. I travel quite a bit and notice I ache after eating meats on foreign countries. Quinolones are banned in food producing animals in the USA but are widely used out of the US. Sure the amounts we get when we eat it aren’t too much – but enough for the floxed body to be triggered. Last thing, for those of us who have healed (mostly), we can look at this as a blessing because we now know better. Not to blindly trust out doctors and avoid something even worse. We now are careful what we eat and avoid crap. We take better care of ourselves. I know some of us have it much worse. I am about 96% healed. I work out. Weight lift. Snowboard. But a year ago I was a mess.

    samara Souza cidade said:
    December 15, 2016 at 7:02 pm

    Olá sou brasileira casada amigavelmente,mãe de três filhos 10,8,e 1 ano….
    Há 4 meses atrás tive uma leve infeção de urina,tomei 7 comprimidos de norfloxacino de 500mg por dia…
    Bendito medicamento,dias de ttrempres,sindrome do pânico,depressão forte,alucinações,estômago preso,rins infecionados,bexiga,doia muito,continência urinaria e renal,tudo preso arroto,espiro,tosse,tudo se prendeu dentro de mim,pressão super alta,sendo que a minha é baixa,fortes cefaleias intensas,sem suor,fraqueza constante,calafrios,trastorno de ansiedade,pela misericórdia gente o que é isso,eu me procurava e não me encontrava,agora imagina eu estava amamentado meu filho de 9meses que o medicamento excretou no leite e mexeu no sistema nervoso dele,e agora mãe e filho,abalados,sem dormir super mal,os médicos não entendiam,diziam que antibióticos,não fazia isso,diziam que eu procurasse um psicólogo que a vida de filhos e marido deixava a vida estressada, eu queria avançar neles quando ouvia isso quantas crueldades e quanta falta de conhecimento com o nosso corpo,meu Deus,enfim tirei médicos de sena e coloquei a fé em prprática,hoje me sinto melhor 4meses depois,mais não estou totalmente curada sinto meus tendões repuxarem,tendinite,braços,dores de cabeça,depressao e ansiedade,estou tomando complexo B,muito chã de camomila,jasmine,me ajudaram muito,logo logo irei passar com meu clínico e pedir cloreto de magnésio PA,porque sei que é bom pros nervos e tudo mais,a maioria dos relatos que vi p magnésio e a alimentação balanceadas ajudou muito,,,,,emfim aainda estou assustada com o episódio foram dias de horrores em minha vida e em familia,mexeu em muitas coisas,fiquei louca desesperada,procurando meios e termos para a situação,encontrei vocês graças a Deus e estou muito feliz pq felizmente e infelizmente descobrir que foi pq do medicamentos tudo isso,estou buscando em Deus a cura sempre na igreja oro todos os dias estou me recuperando e esperando tudo isso passar logo de vez da minha vida,desejo que todos vocês fiquem bem,que jesus possa guiá-los em bpm caminho e que a cura e libertação seja concedida através do amor de Deus em nossas vidas….
    Feliz. Natal….

    Qualquer dúvida estarei aqui,e se poderem me ajudar tb fico grata pela dedicação de ttodos….abraços sam

    CL said:
    December 16, 2016 at 9:05 pm

    Thank you for sharing your story. It’s clear you have a gift for writing and God wasn’t going to let this take it away from you! I was floxed in 2004, at that time there weren’t stories on the Internet and support groups like there is now. Your story will indeed help others!

    Brooke said:
    January 15, 2017 at 12:13 am

    I just recently had a hysterectomy, post open 2 weeks. They gave me straight up Levaquin in my IV. After I was wheeled into my room I started dealing with uncontrollable muscle spams, itching, brain fog,my breathing was erratic enigh that i had to wear oxygen my temprature ranged any where between 94 degrees to 100 degrees and it 9nly took me seconds to go from one extreme to the other, and despite the heavy amount of narcotic pain meds and nausea meds, I couldn’t sleep. I wanted to, but couldn’t. Less than a week later it was discovered that I had formed an abcess the size of a 20 week old baby. Emergency surgery with another dose of Levaquin. It’s been a week since that surgery, and I am dealing with all this crap. Despite keeping my house warm,wearing socks, heavy Flannel pj’s, with sweaters, my temperature fluctuates wildly, although today it’s been at 94 to 95.6 degrees. And the brain fog is almost as frustrating. I too can look at an object and know what it is, but when I try to talk about the object, I cant get the words to come out correctly. I try to sleep, my muscles jerk so hard that I’ve nearly fallen out of bed. And speaking of sleep, or lack thereof, I used to go to bed around 9. It’s going on Midnight and I’m so exhausted I could cry, but I can’t sleep. Levaquin hasn’t ruined my life quite to your extent, it has made a drastic and not good change in mine. I hope you get 100% better.

    D. Mullins said:
    April 5, 2017 at 4:42 pm

    My own family does not believe me. I have been sick for so long, they think I am overreacting.

    Becky said:
    April 30, 2017 at 8:25 pm

    I have LOTS of TENDON PAIN in my arms!! I have been afraid to have a massage due to they might rupture! What are you thoughts of this? I tried PT and it didn’t help. I can’t put any strain on them without pain. Wondering what your thoughts are for this?

      EG said:
      May 2, 2017 at 1:35 pm

      Becky – Did are you taking any supplements? They really can help you, but take 2-3 months (in my experience) to start showing some affects. One of the best places to get some advice on supplements is with Kerri Knox (Holistic Nurse). Also for your tendons a regular Epson salt (magnesium) bath might help a lot. Kerri Knox wrote a book which you purchase and download over the Internet which addresses these supplements and other helpful stff. They have helped a lot of people, so you should get on these ASAP.

    Azz said:
    August 6, 2017 at 1:58 am

    I took the poison just a week ago for a mere sinus infection (I’m 33) If all the symptoms you mentioned weren’t bad enough I’m also suffering from psychosis. This is the scariest symptom for me I hope one day I can also get better I I’ll try my best just the same as you did. At least I have hope now.

      greendingy said:
      October 8, 2017 at 12:38 pm

      please know this is normal. Try to stay calm. Go onto The Fluorolone Toxicity Solution and download the book. You have to take the supplements mentioned in this sight. AND CHLORELLA. If you are in bed, like I am(also got poisioned 3 weks ago)…do everything from the computer. This is an epidemic. There is alot of information. I ruptured 2 tendons, one severely in 2009 because I never heard of this. Until I got so sick this time I looked it up and when I saw the words TENDON RUPTURE, BOOM…I went on a search and definitely had been posisoned. YOU ARE NOT ALONE. do the research and what you have to do to get better.

    Kay said:
    August 22, 2017 at 4:59 pm

    This is crazy. I was prescribed a compound formula of Levaquin hemihydrate for staph after sinus surgery. Had to inhale directly into sinuses for 60 days. I have no doubt it was this Levaquin poison that caused my issues. I experienced almost all these symptoms and never associated to this horrible drug. My son was murdered less than a year before and most doctors thought the severe Pain, Panic Attacks, Anexity and extreme fatigue were a result of grief. They had me convinced as well. I just recently after suffering for 3 years saw an article in a magazine and read the symptoms and side effects of others and realized that I had been poisoned. Looking forward to retirement in a couple of years and now I can barely make it through the day, much less know how I can make it 2 more years. I feel I lost my life as well.

      Rob G said:
      November 5, 2017 at 9:56 pm

      Kay,
      So sorry to hear your story. At least now you know what you’re dealing with and can take the steps to heal. Check floxiehope.com for inspiration and read all the stories and make your own supplement, diet, and mental health plan. Then get offline and take each day as it comes and know that you will get better. This is what all the recovered Floxies say works. I’m new in this (2 weeks) but am hopeful for recovery. Good luck to you, I wish you the very best and hope you are healthy again by retirement.

    Cheryl Hanstke said:
    September 23, 2017 at 10:25 am

    Thank you for,sharing, I will be reposting. Have not written my story yet but I will, you have inspired. My journey took longer because I didn’t start looking til almost 3 years out from initial floxing. Every time I raised this as a possibility I was put off by my doctors, surgeon, specialists etc….what did I know, more menopause than adverse reaction, don’t be sillly, never happened before and very rare are a small sampling of what I was told. However. You don’t just become disabled, virtually over night! I was -a 54 yr old active, healthy, engaged, fit, self employed single mom of teenage twins. Over night I was bed ridden and they became my care givers. They lost their youthful innocence due to this drug, grew up way too fast, and I lost me. Not until I found a NP doctor who understood what was going on did I begin the long journey to healing. I lost nearly 6 years of my life….I am now ready to cut the long hair I have grown because I was always too sick to get it done. I’m bringing back the old me before CIpro exploded inside of me and destroyed my health. I want to be that spunky short lady with spiky hair who managed to have it all….well mostly, some days LOL!! Thanks for your story, it sounded like the Coles notes version of mine!! Continued health my dear, faith and healing. Kept me going too!!

    Cheryl
    St Catharines ON Canada

    Sarah plato said:
    October 15, 2017 at 12:01 pm

    Hi. Your story is so similar to mine… I’m two years out now. I had nightmares night one, peripheral neuropathy by night three, bad blood sugar drops day 4, then I stopped taking the generic levaquin. Then things got so much worse. I too read up as much as I could on it and the horror stories. I started charcoal immediately and magnesium. But it was already too late, within a week I would slowly loose my limbs ability and by two weeks out I was completely paralyzed, couldn’t regulate my breathing or heart rate and said my goodbyes. Thankfully I too researched what to do and started wahls level 3 diet, tons of supplements from the toxicity solution guide, and daily Meyers cocktail iv’s. I can say it’s been a tough road but I’m two years out and doing much better but have relapsed a bit every so often some more major than others but none the less better. Feel free to reach out to me if you want. God bless. Glad you persevered. Keep the hope.

    Alexandra said:
    November 17, 2017 at 9:49 pm

    Hey i will like to know what help the most to recover i got floxed When i went to the doctor in Mexico i had an infection in my Stomach and the doctor prescribed me lavaquin he never warned me of any Side effects he just said take it you will feel better he prescribed to me for 7 days o500 mg i only took the first dose at fisrt then i dicided to take half of it for 5 days or 6 until i felt the side affects from the medeine i had insomnia enxiety i couldnt sweat anymore. I thought my symtoms were goen to go away soon but no then i was soposed then when i got back from my vacations i did a research and i saw that i got floxed the symtoms will get worst i cant sleep mt enxiety gets worst than ever i feep down being sick i feep burning sensations inside my head and pressure it kinda stop while taking Nac but idk if its helping i have lot of muscles spasm i take Magnesium vitamin b12 and vitamin C and multivitamin and vitamin D3 and NAC and Coq10 but idk if those things will help of if theres other stuff that can help me i wana know what can help mee without harming me more that i am already please anyome email me that will be really helpfull. My email is aalexandravalencia990@gmail.com

    CJ said:
    February 19, 2018 at 6:25 pm

    First off, I’m SO sorry about your dog. That is horrifying & my heart breaks for you. I can honestly feel your pain to such a degree on all of it! (We lost a dog to liver failure due to Rimadyl years ago)….I also feel your pain on the Levaquin. Unfortunately, I was on it for almost a year. I (like you), trusted all the Dr’s & I am paying dearly for it. Here’s my story…. It started with a bunch of sinus infections over a year long period. I was prescribed several antibiotics & nothing worked. I had a CT scan which showed a nasty infection in all of my sinus cavities excluding the Sphenoid. Again, trusting a Dr… went ahead with surgery. Biggest mistake of my life. They accidentally removed too much turbinate, so now my nose had no way of filtering all the allergens, toxins, etc. This set me up for a sinus infection every other month. After years of Amoxicillin, Bactrim & Augmentin (allergic to most others), a Dr. gave me 2 weeks of Avelox. I didn’t feel better & they moved on to Levaquin. At this point, I had been to an ENT, Allergist & Immunologist. They found some immune disfunction causing my re-current infections (CVID) At this point they said I needed 3 months of Levaquin because the infection was so hard to treat. To be honest, I didn’t notice any terrible side effects other than some stiffness. I still ran 5 days a week & was actually feeling better on the Levaquin. A month after I was done with it, the Sinus infection was back & guess what…. 3 more months of Levaquin & now steroids to boot. Google steroids & Levaquin (God knows I should of!), but I was so DESPERATE to feel good again. I was so sick & would have done anything to feel better. I believed my sinus infection could become dangerous because of my immune deficiency, so I figured they knew best. That’s when all hell broke loose. This time I started feeling so achy, joint pain, heel pain, but the worst was my neck. Omg, awful constant pain. Now I’m popping Tylenol to deal with the pain so I could go to work. During the last week of the Levaquin, they increased the dose to 750mg for 7 days. It killed to get out of bed, I was dizzy, sore, hallucinating & had no memory left. NO ONE understood. My teeth were literally cracking I left & right. That’s when I started to do my own research (the Dr’s all told me it’s not the Levaquin that only affects tendons & my problem sounded more muscular. I heard…. You’re just getting older(I was 39 & the year before was running 35-40 miles a week). Today I have constant pain, brain fog, balance, vision problems & was recently diagnosed Hypothyroid. I know I may have had some sinus infections but I was otherwise very healthy before the Levaquin. I was probably in better shape at 39, then I was at 20. Now, if I can do yoga & go for a long walk it’s amazing. I completely empathize with all that you’ve been through & appreciate all the recommendations. I’m now working with a Naturopath & taking many of these supplements in the hopes for a recovery. I have lost friends through this process because no one believes an antibiotic could cause all this damage. Thank you for sharing your story & letting the rest of us know we are not alone. God Bless!

    Matt Burns said:
    March 25, 2018 at 12:04 pm

    Thank you for sharing the story. I took Levaquin last summer and it was a disaster. The problem is that I was diagnosed with Lyme a couple weeks after and I don’t know what symptoms I can attribute to the Lyme and what I can attribute to Levaquin toxicity. I have experienced all the symptoms you describe. Major anxiety. Brain fog. Cognitive function. Hair loss. Tremors. Temp fluctuation. The works. But ALL these symptoms can be linked to Lyme, too. So frustrating. I don’t know how to sort it out but after Levaquin it was like a nuclear bomb went off inside me, as you say. I take a ton of supplements, including the magnesium, CoQ10, and glutathione, so I’m hoping to repair myself eventually. If you’re interested, here is my own story entitled “Levaquin with a Twist of Lyme”: http://lymeydisease.blogspot.com/2018/03/levaquin-with-twist-of-lyme.html

    MIKE said:
    April 16, 2018 at 7:41 pm

    Thank you for taking the time to share your story and give hope to others. I was also given the generic version in February 2018. Luckily my symptoms weren’t as fast or as severe as yours. A few weeks after I started getting numb down my arm and feet. Thought it was due other health problems. Seemed to go away for a week or so but has returned. Just saw a post someone had up on Facebook about these drugs which got me to look into them. Will need to get some testing done to make sure no more damage such as aneurysms. Thank you again for your story. Hope you have 100% recovery and they stop with this dangerous drug

    mountainsandmustardseeds said:
    April 18, 2018 at 6:02 pm

    I was told about your story the other day through my blog. I just wanted to thank you so much for sharing your story. I shared mine and it’s been a whirlwind, but a worth it one. So glad you told yours as well. Power to ya sister! https://mountainsandmustardseedssite.wordpress.com/2017/03/18/this-antibiotic-will-ruin-you/

    Patricia Roshaven said:
    May 29, 2018 at 2:44 pm

    Very interesting. Today I started on Lefofloxacin 250 mg for 3 days for a UTI. I’m wondering what is ahead for me. I am allergic to penicillin, Cipro and Bactrim, so Lefofloxacin seems to be the only remaining choice. I’m wondering what dosage you were taking when things went so badly. Thank you for all this information. I’m starting on your recommendations now, even though, so far, I do not have any side effects.

      Amy K. Nichols responded:
      May 29, 2018 at 2:47 pm

      Lefofloxacin is another name for Levaquin. If you’re allergic to Cipro (a fluoroquinolone), why would your doctor prescribe it? Yikes. I hope you don’t have any problems with it.

    Dawn Carter said:
    July 3, 2018 at 6:23 pm

    I just read this, and I have taken levofloxacin before and have had a million issues they could never figure out. I have 3 cystic fibrosis children who have had to take cipro like tictacs. My youngest was a strong athletic little guy who played football and everything now 6 years later he has rhumetoid arthritis lives in severe pain with so many issues the doctors can’t figure out. I am so angry and devastated that my sons cf has gotten worse because of the other issues impeding his wellness. And how did I not know any of this? They just prescribed him another month long cipro last week. And I had to rush him to the er last night for another 2 weeks stay. I get to watch my son decline, when he could have flourished. I found this because I have been sick and had to see a different doc today who gave me yup levoquin for some strange illness they can’t figure out ( ulcers on my uvula and inflamed lymph glands). So when I took it and started itching alittle I looked it up and found a butt ton of things. And you. I am throwing my bottle away. But have no idea what to do for my 3 boys. Cipro is the go too cf med. How many cfers have died because of this? And how do I convince a teenager to do any of this? This is devastating, and I feel so guilty I didn’t learn this sooner!

    Debbie said:
    July 17, 2018 at 5:20 pm

    Thank you do much for sharing your story I just experienced this one week ago and thought after the first pill I was going to die! This is is so helpful and I am encouraged L would write more but am nauseated!

    Gregory Brown, aka, whstlr... said:
    August 8, 2018 at 5:23 pm

    Thank you Amy, finally have answers to why I lost everything… Peace myFriend, whstlr…

    Teresa Segal said:
    August 28, 2018 at 11:31 am

    I want to thank you so much for your blog
    I recently stopped taking Levaquin after experiencing more pain, the likes of which I’ve never experienced before!
    I don’t have all of your side effects thank God but I can empathize with you.
    I got a prescription for Levaquin because I had double pnuemonia that I didn’t know I had.
    I went to my Dr and he didn’t listen to my chest or anything and I told him I thought I had bronchitis.
    My original reason for seeing him was for a CT scan showed four shadows on my lungs.
    He wasn’t even aware of it because his PA called me and told me I needed a CT scan.
    When I told him about my bronchitis (or what I thought was bronchitis) he put me on a zpak.
    I had a follow up CT scan for the original issue of the shadows on my lungs which I was referred to a pulmonary Dr.
    The MA also said that “you still have double pnuemonia”?
    I never knew I even had pnuemonia although I probably should have but I’m no Dr.
    She then proceeded to tell me that Dr prescribed Levaquin for my pnuemonia.
    I was prescribed 10 500 mgs of Levaquin.
    On the 6th day I had in my right leg. I attributed it to arthritis because of my age (I’m 60 years old)

    By the 9th day I was in excruciating pain and couldn’t understand what happened to me, (the only thing different I’d done was take new medication, Levaquin) I called my pharmacist who told me to immediately discontinue it.
    I called my Dr on the Saturday I quit taking it on the emerald after hours phone number.
    He then prescribed another Zpak.
    Needless to say I haven’t taken it.
    I on day 9 of being off of Levaquin and I’ve yet to see a Dr because I assumed the knee pain, dizziness and lack of attention span (I thought it was tendonitis) would go away after I stopped taking that poisonous Levaquin.
    After reading your story I realized that I was lucky in a sense that I didn’t suffer like you.
    My heart aches for you!
    It appears from your blog that Levaquin can still cause side effects even after we stop taking it?
    I’ve been through a side effect once where I couldn’t speak what I was thinking and I was never more frightened. The medication was for depression.
    After reading your article, I’m leaving my POS Dr and I wish I was financially able to sue him for what he’s done to me.
    Needless to say I am not going back to him and he’s been my Dr for over 15 years.
    My pharmacist told me more about what I should do and how danger and widespread Levaquin is.
    He also said it’s one of the top antibiotics on the market.
    I hope my comment makes sense.
    I don’t have a website. I’m just another victim of Levaquin.
    I’m seeing an orthopedic surgeon ASAP as my pharmacist thinks it’s either a ruptured tendon or possibly a tendon that has fallen apart.
    Thank you so much for your blog.
    It’s helped me realize I wasn’t losing my mind.

    Ruthel said:
    October 4, 2018 at 2:01 am

    Thanks for this post and sorry for what happened. I took two of these drug and stopped it. I was not able to sleep for 2days and 2 nights. I had been sick before i took it so i already was sleep deprived. After taking it, i was so exhausted,depressed and anxious. I am amazed at how scary this drug is yet docs prescribe it without so much warning. The doc wanted to lower the dose only but I said “no, i am not going to have anymore of it in my system”.

    Adam Lomax said:
    October 14, 2018 at 7:37 am

    Thanks for writing this Amy. I’m in a similar situation to you, recently reacted to a Fluoroquinolone. I’m doing all the necessary things but I wonder – did you just take the standard dose of MitoQ (10mg) or double the dose. I’m currently just doing 10 a day, alongside about 400mg Ubinquinol. Thinking of either doubling the dose or moving to Ubiquionol and PQQ. Thanks !

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